Donna Smith, American SiCKO, is executive director of the Health Care for All Colorado Foundation
Some say I should never call it "my" cancer. But after three rounds of this fight waged and two won so far, I think I am entitled (yes, I said entitled) to call this whatever I wish to call it. So, it is my cancer. It is my cancer struggle, and the lessons I have learned are my cancer lessons.
This brief piece will not recount every lesson as that would not be appropriate or possible. Some of those who have been the cruelest to me throughout this process would be injured by that disclosure, and I just don't want to do that at this time. Like most of us, I have trusted when I shouldn't have and reached out for support when and where none was available. Those human dramas are shared by all of us whether cancer was involved or not.
But I have seen a harsh and humbling reality through this process. We Americans often show diminished capacity to care for others in a way that mirrors our society's devotion to the individual and not our collective well-being. Even as we have watched the struggles and stresses with the implementation of the Affordable Care Act/Obamacare, we have forgotten that there are those among us for whom the glitches and delays present huge stresses and concerns about costs and coverage for current health issues well beyond the political dances and dynamics.
With my current cancer issues still not fully known, I have more tests and treatment coming up. The clock is ticking, and there are still weeks to go before I'll know what coverage may replace my $875/month COBRA/Aetna coverage on the Colorado ACA exchange. I don't have unlimited resources to pay the COBRA premium both at the end of November and pay the first ACA exchange policy premium due by December 15th. I don't know if I can keep the doctors I will have at that point or if I'll be left in some transition period right in the middle of the diagnostics and/or treatment. And what if new doctors cannot see me for weeks or months as is often the case with new patients?
But we're not talking about any of that as we examine the ACA issues, are we? Nope. We're talking politics. We're talking about who is right and who is wrong and who will pay in the next election cycle. We're sure not talking about cancer patients and what we may deal with. The reality is we just really don't care too much about what patients will face in all of this. I can say that I am sort of used to that position now as what patients think and need is often not even in the mix in terms of what policy advocates and even reform activists care about. We are a selfish society built around protecting the individual freedom to be just as self-serving and cruel as each one of us chooses to be.
If we just had really fought for improved and expanded Medicare for all for life, no patient currently in need of care would have the worries I have now. There would be no rough transition phase and no loss of doctors or other providers to negotiate. Instead, this may become a matter of life and death for me and many, many other people.
So, even as my cancer teaches me personal lessons, I do hope I will remain physically strong enough to allow my cancer to teach broader lessons about compassion, social and economic justice, and the path forward to a truly universal, single standard of high quality care for all under a single-payer modeled health care system.
October 23, 2013 -- Today's count of the health care dead and broke for profit in the U.S.:
The 2013, to date, U.S. medical-financial-
industrial -complex system dead: 36,795
The 2013, to date, U.S. health care system bankrupt: 580,600
** These figures are calculated based on the Harvard University studies on excess deaths in the U.S. due to lack of insurance coverage or the ability to pay for needed health care, and the Harvard University study that calculated the high percentage of personal bankruptcies attributable to medical crisis and debt in the U.S. 123 people die daily due to lack of coverage or cash to pay for care; 1,978 go bankrupt every day due to medical crisis and debt though the majority had insurance at the time their illness or injury occurred. This statistic is also based on the 1.2 million bankruptcies in the U.S. in 2012, according to the U.S. Bankruptcy Court, and calculating those medically-related bankruptcies from that number.http://www.healthcareforallcolorado.org/endorse_right_to_health_care
Follow Donna "American SiCKO" Smith's daily blog at: http://donnasicko.blogspot.com/
November 9th, 2013
Click here for this week's full schedule for the State Theatre and Bijou by the Bay in Traverse City, Michigan. The day has arrived. For ...
September 10th, 2013
[View the story "John Kerry's Accidental Diplomacy" on Storify]
July 30th, 2013
Today Bradley Manning was convicted on 20 of 22 counts, including violating the Espionage Act, releasing classified information and disobeying orders. That's the bad news. ...
June 5th, 2013
This past week, the Motion Picture Association of America (MPAA), the main federation of Hollywood's six major studios, posted on their web site a list of what they believe ...
March 23rd, 2013
This evening is going be a big moment in turning our country around on the issue of gun violence. That's why I desperately want you ...
March 21st, 2013
I am hosting a nationwide series of house parties this Saturday night where tens of thousands of people will gather together in living rooms to ...
March 15th, 2013
The response to my Newtown letter this week has been overwhelming. It is so very clear to everyone that the majority of Americans have had ...
September 11th, 2010
OpenMike 9/11/10 Michael Moore's daily blog I am opposed to the building of the "mosque" two blocks from Ground Zero. I want it built on ...
December 14th, 2010
Yesterday, in the Westminster Magistrates Court in London, the lawyers for WikiLeaks co-founder Julian Assange presented to the judge a document from me stating that ...
May 12th, 2011
"The Nazis killed tens of MILLIONS. They got a trial. Why? Because we're not like them. We're Americans. We roll different." – Michael Moore in ...
November 22nd, 2011
This past weekend I participated in a four-hour meeting of Occupy Wall Street activists whose job it is to come up with the vision and ...
September 22nd, 2011
I encourage everyone I know to never travel to Georgia, never buy anything made in Georgia, to never do business in Georgia. I will ask ...
December 16th, 2010
Dear Swedish Government: Hi there -- or as you all say, Hallå! You know, all of us here in the U.S. love your country. Your ...
November 2nd, 2010
This letter contains (almost) no criticisms of how the Democrats have brought this day of reckoning upon themselves. That -- and where to go from ...